Comments on: Will Knit For Bananas

By: gaia

gaia — Mon, 23 Jun 2008 13:15:29 +0000

Hi,

I’m not sure, but I think I’ve never posted anything to you before. Just HAD to do so this time because your symptoms are so close to the ones I had for too long before I was diagnosed, it makes me shudder. I should have died, but was very lucky and I was going to my family Dr. all the time with the same complaints. I was told I had asthma or was plain crazy and given antidepressants! Meanwhile, I was worsening. One other Dr. in the group was SURE it was my gall bladder. Test said NO. Another group Dr. took one look at the x-ray and said it looked like I had fluid gatherings around my heart…I had Congestive Heart Failure. Please go to better Drs. My drs. were considered to be excellent, but they missed this entirely. There is a blood test that can tell them if you have this. Your description of how you can’t walk upstairs and so many ordinary things cause so much trouble for you. This was just like i was. Do you have a cough? Do you find it better to sit up in the bed? Just wondering. The great thing is I was I had between 3-5 years to live, and I accepted this very easily (I’m a Buddhist)but the rest of my family went nuts. End result: I did everything the cardiologist told me to do and last year I received a clean bill of health for my heart. I never thought that was possible.

Hope you trace this malady down and get it taken care of very soon! Life ain’t no good if you can’t have any fun! I love reading your blog and wish only the best for you.

gaia

By: skweekie

skweekie — Mon, 23 Jun 2008 01:31:37 +0000

Kim, I haven’t posted for a while. Remember me. I thought up the Zombie Lady Couture idea. Are you still getting thalidomide treatments? From Canada? I attended the annual convention of clinical oncology a few weeks ago, and gave the Celgene rep an earful about the problem you described in your post about MM last year. You should have seen the Celgene display booth at the convention. They are really pushing Thalidomide for MM. The rep wasn’t very helpful. Just thought I would let you know that someone is trying on your behalf.

By: Leah

Leah — Sat, 21 Jun 2008 21:42:09 +0000

I just went through similar symptoms. At the ER ( I had a stroke), they diagnosed blood clots in both my lungs. I also do not get much exercise, much like what you say about yourself, and the clots had developed over a period of time. Your hospital sounds scary!! I am so glad you are a good advocate for yourself and can overcome the incompetence. Please get yourself checked out and don’t stop until you get an answer that makes sense and will lead to feeling better. By the way–I absolutely love your blog. I found you during the spector trial, and have enjoyed your sense of humor since.

By: luvgabe

luvgabe — Sat, 21 Jun 2008 16:36:55 +0000

Kim, I second what Sandy wrote. You MUST go seek a second opinion from a good doctor ASAP–if not for your own interest, then for us, who love you.

Do it! You must stop being in denial about the gravity of your blood pressue & heart condition.

By: your bro

your bro — Sat, 21 Jun 2008 13:59:45 +0000

glad your back. when i come here and don’t see new posts from you i start to worry. since i know you are on your computer daily so i start to wonder why you haven’t written. anyways, i miss you humor and wheres the crazy shit from the newspaper monthly? i know i’m not the only one who misses it. take care.

By: Sandy

Sandy — Sat, 21 Jun 2008 12:15:00 +0000

I am not happy. Your body cannot take another chance of going through something like this. If you don’t get to a decent doctor soon, I will also be mad at you. You are worse now than when all started. I do not want anything to happen to you, now, not ever. That you cannot sit and even do the things loved is the most telling of the situation.

Women are so overlooked within the health industry and know you can kick their rear ends to follow through. House would love to have you as his patient right now. I can see him going through your house and picking through all the yarn wondering where all of the odd stuff came from and what it is made of. Checking out the Harley Barn and odd people running around through it. And perhaps ZL’s house….you haven’t been in there have you? Who knows what is living inside of it.

Bottom line, we do not want you this sick. We want you well. So let your next post in a next couple of days be telling us you have an appt next week with a specialist.

It is always a mystery to me how someone never met can be loved so much. But we do and my heart goes with you in taking care of all.

By: AtwoodLady

AtwoodLady — Sat, 21 Jun 2008 11:56:04 +0000

Hi Kim……happy to hear you are home and a little more comfortable.

I hope you find the medical care you need soon.

Nay

By: Cathy

Cathy — Sat, 21 Jun 2008 07:49:41 +0000

I used to work at a hospital very similar to what you are stuck with in Malone. Minimal diagnostic capabilities, minimal staff talent too! Thankfully that traumatic part of my life is over …

Kim, go somewhere that the doctor(s) will sit and listen to you… really listen. You never got any answers after your abnormal stress test … and don’t let ‘em blame this on your other health problems unless they can prove this is all tied together.

I’m not convinced this is all tied together.

P.S. Try some cantalope melon for potassium if you are sick of bananas.

By: tess

tess — Sat, 21 Jun 2008 02:12:24 +0000

Welcome home, I am glad that you survived another visit to Malone Hosp. I “ditto” the above thoughts. Call a reputable cardiologist in Plattsburgh and get to the bottom of the problem. It is most likely very fixable, so get relief and a quality of life. Do it soon.
Again, its nice to have you back.
Tess

By: Gail in NC

Gail in NC — Fri, 20 Jun 2008 21:44:31 +0000

Kim, Your sense of humor amazes me! To have the problems you have and still make such wonderful comic stories out of them is phenomenal.

Please seek a cardiologist’s opinion ASAP. You are too special to take any risks!

Blessings,
Gail